[Eng Below] 波の会愛知県支部の機関雑誌に福智 寿彦院長のあいさつ文を掲載させて頂きました!

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☆波の会(日本てんかん協会)愛知県支部の機関雑誌「おおなみ」5月号に、新年度を迎えあいさつ文を掲載させて頂きました☆

新年度を迎え、ここで心機一転、新たに目標を立てられている方もいらっしゃると思います。

私が深く関わっているてんかん啓発キャンペーン「パープルデー」も日本で広げ始めて今年で四年目になります。今年は3月25日に名古屋テレビ塔で無事パープルデーを開催し、イメージキャラクターの「パープルマン」も活躍し、現場は大いに盛り上がりました。また仙台や東京、大阪、広島、鳥取など全国各地で様々なイベントが行われ、年々と記念活動の規模が大きくなっています。

一方で、啓発活動に参加し強く意識するようになったのが「内側にある偏見(スティグマ)」です。記念活動を含めこれまで「外側にある偏見」、つまり人々のてんかん患者への偏見をなくすことを念頭に頑張ってまいりました。ですが、当事者、家族、医療者自身による偏見、「てんかん発作があるため仕事を諦める、自分はてんかん患者だから社会生活は無理」など、「内側にある偏見」の壁を乗り越えることも大事です。当事者自身の偏見をなくさず真の社会復帰は実現しません。当事者たちの心に潜む自身への偏見を乗り越えていけるよう働きかけを推し進めていくことが新年度の目標です。

皆さんも自分にできることを考えみてください。皆さんの投げかけた一言、踏み出した一歩が世の中を大きく変えることにつながるはずです。

☆The greeting letter has been placed in the magazine “Oonami” ☆

The Aichi Branch of Nami no Kai(Japan Epilepsy Association)published its institutional magazine “Oonami”(No.5, 2008) and my greeting letter has been placed in it. In the new year, I believe that people have their own new purposes.

As for me, this year is the fourth year since we started the campaign “Purple Day”. On 25th, March, we held the “Purple Day” anniversary festival in Nagoya successfully. Thanks to the wonderful performance of image character “Purple Man” and local idol group, the festival was heated up and participants enjoyed the events greatly. Besides Nagoya, “Purple Day” has been celebrated in other main cities such as Tokyo and Osaka and its scale is definitely becoming increasingly large year by year.

Meanwhile, what I am considering about the epilepsy remedy through these campaigns is that we should also help patients dispel internal stigma. Including “Purple Day” campaigns, we have been striving to dispel people’s prejudice against epilepsy patients known as external prejudice. However, it is also extremely important for patients themselves to be confident with lives. Negative thinking such as “I have to quit my job because of my epilepsy seizure” and “I could hardly enjoy social life since I am an epilepsy patient”, is also the impediment of their complete social recovery. So the new purpose for me this year is that we should also focus on internal stigma and help patients dispel their prejudice against themselves.

I sincerely hope that everyone could consider about what we can do for epilepsy remedy. Any idea or comment is welcomed, and your one proposal and one step mean a lot for changing the world.